Christine is a mum with two daughters. Her 16-year old Imyjen has a rare muscle condition known as Schwartz-Jampel syndrome.
The family now has funding through the National Disability Insurance Scheme (NDIS) which means they can get supports as a family which will enable Imyjen to do a range of different things and for Christine to be able to go to work as well – which she’s said has been important to her being able to stay connected with the community.
Christine has some advice for other people who are transitioning to the NDIS.
Watch Christine & Imy’s ‘Our Story’ video on the page or on YouTube – click here.
Planning for the NDIS
Christine said that one of her goals for Imyjen was for her to be more independent, so she has started to think about doing things differently so that their family can live a more normal life and get out and interact.
She encourages other people with disabilities and their families to do this too, and to think about what your goals are. To think about what your life might look like in the future. And to think about how you might want it to be as a normal family.
Talk about those goals when you are going through your NDIS planning, how you might build independence for both the person with disabilities and as a carer.
Christine said that with the NDIS she is looking forward to accessing the community, being more like a normal family, Imyjen being more independent and living a more normal life.
Special thanks to Christine & Imyjen for sharing their story and for being involved in the filming of the video.